There are so many blogs out there for individuals living with ostomy bags. Those that have them temporarily, those that have them permanently, those that have them because they have UC or Crohns or IBD, and then there's... me. I have one because I have an autoimmune disease that just. won't. quit. I am 30 years old and I feel worse than my 90 year old grandmother. How does one cope with this? This life that is not fair. This life that is full of pain and hurt and uncomfortable situations (because that shower I had after surgery? chaperoned by my nurse). I have to carry around a bag of poop, there is nothing glamorous or sexy or trendy about that. Before the surgery I was pushing about 150 lbs. Now? About 110 lbs. I get excited about spring- the change in weather, clothes, and the FLIP FLOPS! It's in the 80's out and I am wearing a BAG OF POOP. It's hot and uncomfortable. It's not fair. I am so angry at people. People that are eating fast food (ummm... hello? colon health) or those that are trying to get the closest parking spot so they don't have to walk as far (ummm... hello? colon health) or the ones that drink the Extra Big Gulp (how 'bout some water?) I didn't realize how much your colon does for you and how well you have to treat it. Because, I know now... and boy, do I have regrets.
Monday, May 3, 2010
Deuce
There are so many blogs out there for individuals living with ostomy bags. Those that have them temporarily, those that have them permanently, those that have them because they have UC or Crohns or IBD, and then there's... me. I have one because I have an autoimmune disease that just. won't. quit. I am 30 years old and I feel worse than my 90 year old grandmother. How does one cope with this? This life that is not fair. This life that is full of pain and hurt and uncomfortable situations (because that shower I had after surgery? chaperoned by my nurse). I have to carry around a bag of poop, there is nothing glamorous or sexy or trendy about that. Before the surgery I was pushing about 150 lbs. Now? About 110 lbs. I get excited about spring- the change in weather, clothes, and the FLIP FLOPS! It's in the 80's out and I am wearing a BAG OF POOP. It's hot and uncomfortable. It's not fair. I am so angry at people. People that are eating fast food (ummm... hello? colon health) or those that are trying to get the closest parking spot so they don't have to walk as far (ummm... hello? colon health) or the ones that drink the Extra Big Gulp (how 'bout some water?) I didn't realize how much your colon does for you and how well you have to treat it. Because, I know now... and boy, do I have regrets.
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